Monday, 21 January 2013

Getting there...

It has been a busy week for our little ones. Chase was extibated last Sunday and Reilly followed suit and lost her tube on Tuesday! Both babes have been doing well on their new machines. Chase is much more relaxed and hasn't shown his crazy temper like he did with his tube. His pressures are moderate and he is in around 27 percent oxygen which is great. Reilly spent the first 5 days on biphasic which is a higher mode of support than what Chase had been on, but she successfully transitioned to the Cpap (same as Chase) yesterday. She is on high settings but that's okay! Yesterday the doctors wanted to do a trial on Chase to see if he could tolerate an even lower mode of support and he did well! The Cpap provides pressures to keep his lungs open and oxygen. The low flow, which they tried yesterday, does not give the pressure- just the oxygen. The babes are 35 weeks now so they will need to start feeding soon, and they can't do so on the Cpap (mask). They tried him for an hour and he did great! They decided to give him today off because he had an eye exam today, but the plan is to try him on low flow again tomorrow, and instead of only trying for a set amount of time they are just going to let him go and see how he does! It will be a nerve wracking day but he can do it! And like they say, we won't know until we try! Both babies have had good eye exams which we are so thankful for. Chase is weighing in at 1940g and Reilly is 1540g! There has been so much change and progress in the last week it has been great. Adam and I were talking about how it feels like this is our new life, that each day we will continue to do what we've been doing for the past 10 weeks but after seeing them try Chase on low flow, we realize that we are making progress and that soon these babies will move down the hall to level 2 and eventually we will be taking them home with us! It's finally starting to hit us that we have two babies! Crazy! All of the families that we started our journey with have either moved down to level 2 or have graduated home, and for so long we felt that those were goals that were just too far out of reach but now we know we are heading in that direction and each day we are getting closer and closer to home! We are loving all the cuddles we get to have now that the babies are tube-free. They are getting so big and cute. We will update again this week about Chase's progress on low flow and Reilly's on Cpap.

Until then, keep us in your thoughts! They've worked wonders this far!
xo






Chase on low flow!



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